Narcolepsy and the Quad

A couple strengthening each other's weaknesses through God's love and life's lessons.

Odd Couple

Devyn and I passed a couple in WalMart the other day. I don’t remember what they looked like or exactly why I said it, but I just commented to Devyn on how much of an odd couple they were. Don’t judge me, you do it in WalMart too. Then I paused, “I guess we are pretty odd too, huh?” “Yep.” I had never really thought about it, but I guess stepping back and looking at us, we are definitely not a typical couple. A walker and a wheeler. Narcoleptic and a go-getter. Not-so-tattooed and very-much-tattooed. I guess we don’t deal with typical couple problems either.

My husband is very independent and can do a lot for himself. But, he still needs me around for certain things occasionally. I like it, it makes me feel important. I won’t go into details of the medical side of what I do for Devyn. It would make you blush, even you nurses. But again, I love doing things for Devyn, I enjoy taking care of him. He is not a typical husband. I help get him dressed every morning. I fight those stupid compression socks every morning. Really, have you ever put a pair on? Now imagine putting them on your spouse! I hate those socks, but I sure love my husband. I am occasionally a wheelchair mechanic. Want to see me get really agitated? Watch me change the bearings of Devyn’s front wheels. I am Devyn’s fingers. What he used to do quickly before his injury now takes a whole lot longer. He now patiently teaches me, coaches me, through those handyman tasks that require me to use actual tools. How bad does it suck to watch someone learn to perform what used to be quick and simple for you? And a perfectionist on top of that. Thanks for being patient with me babe.

I’m not the typical wife either. Most of our first year of marriage Devyn was on his own while I slept for days at a time. Things are a little better now, but Devyn continues to take care of me as well. I admire him so much and absolutely love that he takes care of all the business! He makes sure my bills are paid, my car is clean, I have plenty of medication. My doctor’s office knows Devyn better than they know me. He makes my appointments, cancels them when I am having one of my bad days. He makes sure I am taken care of. Makes sure I’m up for work. Even takes care of my nervous little dog. He does so much more, he prays for me, he encourages me.

I love that we started this blog and I’m sorry I’ve been behind with it. I love how Devyn and I express so much more through writing. The more I type the more I realize how much he does and I appreciate him even more. What problems do you face as a couple? What do you fight or worry about? Is it worth it to fight, worth it to worry? What good does it do? Are the problems really PROBLEMS? Imagine life without your love, write out what you do for each other. Love and appreciate each other now, because they might not be here tomorrow.

Love, -Hannah the narcoleptic.


Categories: Narcolepsy, paralyzed, Quadriplegic

Tags: , , , , , ,

4 replies

  1. Sometimes all you need to do is to stop and think. It makes you realize how many blessing you have had and what God has done for you. Just imagine what your life would be like if you didn’t have that blessing in your life and how out of balance it would make you. Your piece put that into words very well


  2. I enjoyed reading your post. Without meaning to, I found myself looking/finding similarities between your situation and my own. As my narcolepsy gets worse each year, my love never fails to understand and support me. I’m glad that someone else has that level oflove too.

    • I am so glad to hear that! It was hard on us for a while. But something just clicked and I think our love is stronger because of that now. My husband is so much stronger than me, and I am so thankful for that!

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