It’s been a long time since I was able to get through the day without a nap or stimulants. I have never been more grateful to God for finally allowing me to feel like a normal human being again. The ups and downs of my emotions, energy, and fights have decreased tremendously since starting xyrem. Amazing is all I can say.
At one point I was up to 30mg ER Adderall. That’s a lot for a girl who was only 92 lbs. before starting medication. I felt great for a month. Then quickly starting becoming sleepy once again. Then my heart started acting up. Then I dropped almost 10 lbs. Two trips to the ER and I was quickly taken off the Adderall.
Next was Ritalin. I very quickly maxed the dose- 60mg a day. 20mg, thirty minutes before having to wake up. 20 mg four hours later. Then another 20. My husband would roll in, attempt to wake me, put water and a bottle of pills in my hand, supervise the medication administration, let me fall back to sleep, then make sure I was up in time to get ready for work. He’s amazing. One thing I loved about him when we met was how patient he was with himself. I could never imagine doing what he does without a grunt or complaint. Now I was teaching him to be patient with others, unintentionally. Who would have ever thought he’d end up being MY caretaker. Of course we had our challenges and arguments, but he stuck by me.
After a couple of months on Ritalin, it quickly lost it’s ability to keep me alive. I sat with my doctor, half asleep. “It’s time for another 20”, I slurred. He responded with the most beautiful words, “you want to start xyrem?” Heck yeah I do. Two weeks after getting the process started I received my first shipment of medication. Just in time too. The weekend before, Devyn and I planned for a zoo trip with the kids. Even with the 60mg of Ritalin I was still falling asleep. Totally missed that trip. And I was more excited about it than anyone.
I have been on xyrem for a month now. My life is changed. I still have good and bad days. But most days I am able to get through the day without any Adderall, Ritalin, or napping. Praise the Lord. My prayers are answered.
Now this I know: the LORD gives victory to his anointed. He answers him from his heavenly sanctuary with victorious power of his right hand. Psalm 20:6
Hannah -The Narcoleptic